The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.
Mark your calendars now! The 9th International Moebius Syndrome Foundation Conference will be held Friday July 30 through Sunday August 1, 2010 in Denver,Colorado. More information on the hotel and other details will be provided during 2009.
Do you have a story idea for the television show Mysterious Diagnosis? The television show documents the experiences of people with rare diseases on their journey to an accurate diagnosis.
On April 23 & 24, 2007 the Moebius Syndrome Foundation hosted the first Moebius Syndrome Scientific Conference which brought together 32 researchers and physicians from 9 countries. The conference was funded by a grant from four institutes of the NIH, the Friends of NIDCR, and the Moebius Syndrome Foundation. For two days the attendees presented their work on the genetics and treatment of the various aspects of Moebius Syndrome, followed by discussions and agreement to work together to unravel the mystery of the cause(s) of Moebius Syndrome.
