Moebius Syndrome Foundation Administration

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International

Argentina

Alejandra Alegre

Santa Elena 443
Santa Clara del Mar
Partido de Mar
Chiquita Codigo 7609

alejandraxs@hotmail.com

Australia

Moebius Syndrome Foundation of Australia
Karin Thompson
kthompspn9@bigpond.com

http://kidswithfacialparalysis-moebiussyndrome.webs.com/

Brazil

Support Group
Liana Ventura, MD
Av Boa Viagerm 3416 Apt 201
Recife, Brasil 51020
55 81 332050903
venturaliana@hotmail.com

Boneto Reinaldo
moebius@moebius.org.br
proseg2@uol.com.br
www.moebius.org.br

Canada

Moebius Syndrome Association
Sandy Batenburg
5011 Hillside Drive
Beamsville, Ontario, L0R 1B7 Canada
905 563-0938
davebatenburg@sympatico.ca
www.moebiussyndrome.ca

Colombia

Norma Hincape
La Tulua - Valle del Cauca
Villa Manzana # 38B – 09
157 225-9693
mgarciber@yahoo.com

Denmark

Danish Moebius Syndrome Organisation
Bo Krogh Nielsen
Ringerbakken 11
DK 2830 Virum
ibbo@email.dk

England

Support Group
Linda Anderson
R7, Linskill Centre
Linskill Terrace
North Shields
Tyne & Wear
Great Britain NE30 2AY

www.moebiussyndrome.co.uk

0191 2964050
Moebius.syndrome@btinternet.com

France

l'Association Syndrome Moebius France
Laurent Ecochard
Boîte Postale 30058
92105 Boulogne Billancourt Cedex
France
info@moebius-france.org
+(33) 6-64-36-06-45
http://www.moebius-france.org

Germany

Moebius Syndrom Deutschland e. V.
Postfach 4109
30041 Hannover
Germany D30169
49 0 511 98453 55
www.moebius-syndrom@de
f.schleier@moebius-syndrom.de

Holland

Support Group
Ben van Zanten, President
Gravenstraat 30
5663 GC Geldrop
Holland
31 0 40 2800559
Ben@van.Zanten.name
info@moebiussyndroom.nl

Israel

Support Group
Hella Edvi
Hargava Home 121, Moshav Nir Jaffe
19210, Israel
04-6401595
hedvid@zahav.net.il

Italy

Associazione Italiana Sindrome di Moebius Onlus
Renzo DeGrandi
Piazza Libero Grassi, 3
20053 Muggio
Milan Italy
039 2726229
FAX 039 2724931
info@moebius-italia.it
www.moebius-italia.it

New Zealand

Support Group

Suzanne Woon
Hastings, New Zealand

suzanne55@slingshot.co.nz

Peru

Peru Support Group

Milena Portaro

020 8940 2492

milepvo@hotmail.com

Philippines

Philippines Support Group
Wennie O. Estrada
Binan, Laguna, Philippines, 4024
639157286544
Email: moebiusphilippines@yahoo.com
www.moebiussyndrome.com.ph

 

South Africa

Support Group
Kay Von Willingh
14 Herbert St, Charleston Hill
Paarl 7646
Republic of South Africa

27  21 862 6902
kay@moebiussyndrome.co.za

http://www.moebiussyndrome.co.za/

 

 

Spain

Fundacion Sindrome de Moebius de Espana
Carmen Leal Granados
Calle 232, no 98-6
46182 La Canada – Paterna
Valencia
Spain
96 132 92 03
Moebius@digitel.es
www.moebius.org

Sweden

Support Group
Rangela Fredsjo
Rubingatan 33
SW-421 62 Vastra Frolunda
Sweden, 46-31-47 14-70
RangelaFredsj/v, Biomedicinska bibl., Goteborgs universitetsbibliotek
Rangelafredsjo1@hotmail.com



Events

10th Moebius Syndrome Conference
10th Moebius Syndrome Conference

The 10th Moebius Syndrome Conference will be held July 13 - 14 - 15, 2012 at the Sheraton City Center in Philadelphia, Pennsylvania. Check back for more details in the coming months.

Read More

Did You Know?

Cranial Nerve 3

Motor nerve- Oculomotor Nerve-Controls most eye muscles. Works closely with Cranial Nerves 4 & 6. Controls eye movement, pupil dilation, and pupillary constriction. It also controls the muscles that elevate the upper eyelids.


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