Moebius Syndrome Foundation Administration

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Disability Organizations

American Association of People with Disabiilities
1629 K Street NW, Suite 503
Washington, DC 20006
800 840-8844
www.aapd-dc.org
aapd@aol.com

Association of Regional Center Agencies (ARCA)
915 L Street, Suite 1050
Sacramento, CA 95814
916-446-7961
www.arcanet.org
arca@arcanet.org

Bandaides and Blackboards
Joan Fleitas, Ed.D., R.N.
Lehman College
Bronx, New York 10468
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
fleitas@optonline.net 

 Children's Rare Disease Network
http://www.crdnetwork.org
24701 La Plaza Suite 201
Dana Point CA 92629
949 248-7273
info@crdnetwork.org

Exceptional Parent Magazine
551 Main Street
Johnstown, PA 15901
877 372-7368
www.eparent.com
EPAR@kable.com

Family Voices, Inc.
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
505 872-4774
www.familyvoices.org
kidshealth@familyvoices.org

Genetic Alliance
4301 Connecticut Ave. NW Suite 404
Washington, DC 20008-2369
202 966-5557
www.geneticalliance.org
info@geneticalliance.org

National Association of Councils on Developmental Disabilities
225 Reinekers Lane, Suite 650-B
Alexandria, VA 22314
703 739-4400
www.nacdd.org
info@nacdd.org

National Dissemination Center for Children with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
800 695-0285
www.nichcy.org
nichcy@aed.org

National Organization for Rare Diseases NORD
55 Kenosia Ave
PO Box 1968
Danbury CT 06813-1968
800 999-6673
www.rarediseases.org
orphan@rarediseases.org

National Organization on Disability
910 Sixteenth Street, N.W., Suite 600 \ Washington, DC 20006
202 293-5960
www.nod.org
ability@nod.org

North American Riding for the Handicapped Association (NARHA)
PO Box 33150
Denver, CO 80233
800-369-7433
www.narha.org



Events

11th Moebius Syndrome Conference
11th Moebius Syndrome Conference

Mark Your Calendars Now! Plan to attend the 11th Moebius Syndrome Conference, Friday through Sunday, July 18-20, 2014 in Bethesda, Maryland, just outside of Washington, DC. The 2014 conference will take place at the Bethesda North Marriott Hotel & Conference Center

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Did You Know?

Cranial Nerve 2

Sensory nerve- Optic Nerve- controls vision by sending information from retina


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