AboutFace International | http://www.aboutfaceinternational.org/ |
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| "AboutFace International was established in Toronto, Canada in 1985. Our vision is that individuals with facial differences find the confidence and courage to live their lives to the fullest. Our mission is to facilitate emotional, peer and social support, resources, educational programs and public awareness for individuals with facial differences and their families." |
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AmeriFace |
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| "The mission of AmeriFace is to provide information and emotional support to individuals with facial differences and their families and increase public understanding through awareness programs and education." |
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American Cleft Palate-Craniofacial Association |
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| "Cleft Palate Foundation operates the CLEFTLINE – 1-800-24-CLEFT – and produces free publications. The CLEFTLINE is an 800-toll free service providing information to callers about clefts and other craniofacial anomalies. Callers can request information about cleft palate/craniofacial teams and parent-patient support groups in their local region." |
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| Children's Craniofacial Association |
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| "Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to individuals and families affected by facial differences." |
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| FACES: The National Craniofacial Association | http://www.faces-cranio.org/ |
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| "FACES: The National Craniofacial Association is a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, or disease." |
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Forward Face |
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| "The mission of Forward Face is to help children and their families find immediate support to manage the medical and social effects of facial differences. We work to educate, advocate and raise public awareness about craniofacial conditions. Forward Face, started in 1978 by parents of children with facial differences, is a non-profit tax-exempt organization." |
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National Foundation for Facial Reconstruction |
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| "Established in 1951, the National Foundation for Facial Reconstruction addresses the plight of children with a facial disfigurement by supporting state-of-the-art treatment, innovative research, psychosocial support and medical training that inspires a new generation of pediatric doctors." |
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Foundation for Faces of Children |
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| "The Foundation for Faces of Children is dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences. Our mission is to provide patients and families with the most accurate, up-to-date, and accessible information about facial conditions, and to advocate for the best care possible for children with facial conditions." |
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Let's Face It |
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| "To advance knowledge about, by, and for people with facial differences and to promote their full and equal participation in society." |
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Changing Faces |
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| "Changing Faces is a UK charity that supports and represents people who have disfigurements of the face or body from any cause." |
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Genetic Alliance |
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| "Founded in 1986 as the Alliance for Genetic Support Groups, Genetic Alliance has become the world's leading nonprofit health advocacy organization committed to transforming health through genetics. Our open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships. We actively engage in improving access to information for individuals, families and communities, while supporting the translation of research into services." |
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National Organization for Rare Disorders (NORD) |
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| "The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service." |
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MUMS |
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| "MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition." |
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