Moebius Syndrome Foundation Administration

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Media and Publications

The following are several print publications and videos that are about Moebius Syndrome and/or craniofacial conditions. 
The Faces of Moebius SyndromeRequest a brochure from the Moebius Syndrome Foundation 
Moebius Syndrome News Access the archive for back issues
If you would like to be added to the mailing list to receive quarterly newsletters, contact us
 
A Guide to Understanding Moebius Syndrome©2006 Children’s Craniofacial Association, Dallas, TX
 A Guide to Understanding Moebius Syndrome
Moebius Syndrome: 2 In a Series For a copy, request the Informational Packet from the Moebius Syndrome Foundation on the contact us page, or contact the Cleft Palate Foundation at www.cleftline.org or 919 933-9044 
AboutFace International Newborn Cares Programhttp://www.aboutfaceinternational.org/programs/newborn_cares.php 
 "Our Newborn Cares Program offers parents a three point program to help them: specialized information and resources; emotional support and understanding; and valuable parent-to-parent connections. Our goal is to help parents deal with, overcome and be successful during the first years of raising a child with a facial difference." facingit

AboutFace Facing Differences

http://www.aboutfaceinternational.org/programs/school_programs/facing_differences.php 
 "Facing Differences is an interactive resource designed for children ages 8 to 12. The independent format (video and program guide with student activities) provides educators accessibility and flexibility to direct learning on diversity issues within their classroom, exploring the common thread of physical differences that weaves across many types of distinctions – disabilities, race, ethnicity, gender and body types." 
Exceptional Parent Magazinehttp://www.eparent.com 
 

"EP Global Communications (OTC Bulletin Board: EPGL) is a 38-year-old, award-winning publishing and communications company. EP provides practical advice and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals who are involved in their care and development."

 
AAPD Newshttp://www.aapd-dc.org 
Books about Moebius Syndrome http://books.google.com/books?lr=&q=%22moebius+syndrome%22&btnG=Search+Books 
 A Google Book Search will find books that mention Moebius Syndrome, some of which are available online 
Moebius Syndrome Educational DVDContact us to request or order a DVD.
Watch on YouTube: http://www.youtube.com/MoebiusSyndrome
 DVD photo
Face: a Portraithttp://www.forwardface.org/video.html 
 "Teaching teens and young adults to celebrate and to accept differences in people - making the world a more interesting and productive place."   


Events

10th Moebius Syndrome Conference
10th Moebius Syndrome Conference

The 10th Moebius Syndrome Conference will be held July 13 - 14 - 15, 2012 at the Sheraton City Center in Philadelphia, Pennsylvania. Check back for more details in the coming months.

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