Moebius Syndrome Foundation Administration

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Government Resources

National Institutes of Health (NIH)

http://www.nih.gov 

 

 

“Focal point for biomedical research in the U.S.  NIH is the nation’s medical research agency - making important medical discoveries that improve health and save lives."

Clinical Trials

http://www.clinicaltrials.gov

 

National Library of Medicine

Pubmed

Medline Plus

NLM Health Tutorials

NLM Go Local

NLM Medical Dictionary

http://www.nlm.nih.gov

http://www.pubmed.gov

http://www.nlm.nih.gov/medlineplus/

http://www.nlm.nih.gov/medlineplus/tutorial.html

http://www.nlm.nih.gov/medlineplus/golocal/index.html

http://www.nlm.nih.gov/medlineplus/mplusdictionary.html

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Center for Medicare & Medicaid Programs

http://www.cms.hhs.gov/

 

National Center on Birth Defects & Developmental Disabilities

http://www.cdc.gov/ncbddd

 

National Eye Institute

http://www.nei.nih.gov

 

National Human Genome Research Institute

http://www.genome.gov

 

National Institute of Dental and Craniofacial Research

http://www.nidcr.nih.gov

 

Office of Rare Diseases

http://rarediseases.info.nih.gov

 

Rehabilitation Services Administration

http://www.ed.gov/about/offices/list/osers/rsa/index.html

 

 

"The Rehabilitation Services Administration (RSA) oversees grant programs that help individuals with physical or mental disabilities to obtain employment and live more independently through the provision of such supports as counseling, medical and psychological services, job training and other individualized services."

 

National Association of Councils on Developmental Disabilities

http://www,nacdd.org

 

 

 "The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities."

 

DisabilityInfo.gov

 http://www.disabilityinfo.gov

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 "DisabilityInfo.gov is a comprehensive online resource designed to provide people with disabilities with quick and easy access to the information they need. With just a few clicks, the site provides access to disability-related information and programs available across the government on numerous subjects, including benefits, civil rights, community life, education, employment, housing, health, technology and transportation.

 

Americans with Disabilities Act (ADA)

http://www.ada.gov

 

Social Security Disability Insurance (SSDI)

http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=166

 

State and Local Resources

http://www.disabilityinfo.gov/digov-public/public/LoadSL.do?categoryId=null

 

National Council on Disability

http://www.ncd.gov

 

 

"NCD is an independent federal agency composed of members appointed by the President of the United States, by and with the advice and consent of the U.S. Senate. NCD provides advice to the President, Congress, and executive branch agencies to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society."



Events

10th Moebius Syndrome Conference
10th Moebius Syndrome Conference

The 10th Moebius Syndrome Conference will be held July 13 - 14 - 15, 2012 at the Sheraton City Center in Philadelphia, Pennsylvania. Check back for more details in the coming months.

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