The Invisible Smile, Living without facial expression
By Jonathan Cole with Henrietta J. Spaulding
Oxford University Press, 2009
A new academic text, discusses life experiences of a number of adults and several children with Moebius syndrome. Available at bookstores and from Amazon.com.
Eye of the Beholder
By Laura Greenwald
Published by Kaplan, 2009
True Stories of People with Facial Differences and their Quest for Acceptance. Formerly titled, "Heroes with a Thousand Faces." Includes a chapter on Moebius syndrome. Available from Amazon.com and KaplanPublishing.com.
Watch video of author discussing her book
My Face
By Marcia Abbott
Published By Forward Face, 1997
Complimentary copies of ‘My Face'
The Moebius Syndrome Foundation is offering complimentary copies of the children's book, ‘My Face' for your family, your child's class, your friends & relatives, and the professionals who work with your child. You may request up to 35 copies of the children's book at no cost.
How to order: Complete the form below, or send an email to marcia@moebiussyndrome.com. Be sure to include the number of copies you would like and your name and mailing address. If you prefer to order by phone, call us at 510 304-2302. The books are complimentary, but donations are always welcome. 35 books can be sent to US addresses only. International mailing rates make it too expensive to mail to other countries. However, we can send 2 copies, complimentary, to international addresses.
Questions? Email us at marcia@moebiussyndrome.com or call 510 304-2302
Children with Facial Difference
By Hope Charkins
Woodbine House, 1996
Out of print, but copies may be available at Amazon.com and libraries.
The Church of 80% Sincerity
By David Roche
Perigee, 2008
David Roche's book takes the reader on a journey of his life experiences, with stories and anecdotes that range from spiritual to raucous. David has a craniofacial condition, venous malformation. Available at bookstores and at Amazon.com.
