The Invisible Smile, Living without facial expression
By Jonathan Cole with Henrietta J. Spaulding
Oxford University Press, 2009
A new academic text, discusses life experiences of a number of adults and several children with Moebius syndrome. Available at bookstores and from Amazon.com.
Eye of the Beholder
By Laura Greenwald
Published by Kaplan, 2009
True Stories of People with Facial Differences and their Quest for Acceptance. Formerly titled, "Heroes with a Thousand Faces." Includes a chapter on Moebius syndrome. Available from Amazon.com and KaplanPublishing.com.
Watch video of author discussing her book
My Face
By Marcia Abbott
Published By Forward Face, 1997
A children’s book about growing up with Moebius syndrome, for children 3 to 10. Available from Amazon.com or print the flyer here to order from Forward Face .
In Your Face
By Donna M. Jackson
Published by Viking, Penguin Group, 2004
The Facts about Your Features. Available from bookstores and Amazon.com. Special: Order from Moebius Syndrome Foundation for $10 per copy. Send order to: Moebius Syndrome News, PO Box 20354, Oakland CA 94620.
Children with Facial Difference
By Hope Charkins
Woodbine House, 1996
Out of print, but copies may be available at Amazon.com and libraries.
The Church of 80% Sincerity
By David Roche Perigee, 2008
David Roche's book takes the reader on a journey of his life experiences, with stories and anecdotes that range from spiritual to raucous. David has a craniofacial condition, venous malformation. Available at bookstores and at Amazon.com.
