Moebius Syndrome Foundation Administration

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Books

  

The Invisible Smile, Living without facial expression

By Jonathan Cole with Henrietta J. Spaulding
Oxford University Press, 2009

A new academic text, discusses life experiences of a number of adults and several children with Moebius syndrome.  Available at bookstores and from Amazon.com.

 

Eye of the Beholder
By Laura Greenwald
Published by Kaplan, 2009

True Stories of People with Facial Differences and their Quest for Acceptance. Formerly titled, "Heroes with a Thousand Faces." Includes a chapter on Moebius syndrome.   Available from Amazon.com and KaplanPublishing.com

Watch video of author discussing her book


My Face

My Face (cover)
By Marcia Abbott
Published By Forward Face, 1997

A children’s book about growing up with Moebius syndrome, for children 3 to 10. Available from Amazon.com or print the flyer here to order from Forward Face .

 

In Your Face

In Your Face (cover)By Donna M. Jackson
Published by Viking, Penguin Group, 2004

The Facts about Your Features. Available from bookstores and Amazon.com.  Special:  Order from Moebius Syndrome Foundation for $10 per copy.  Send order to:  Moebius Syndrome News, PO Box 20354, Oakland CA 94620.

Children with Facial Difference

Book Cover
By Hope Charkins
Woodbine House, 1996
Out of print, but copies may be available at Amazon.com  and libraries.

 

 The Church of 80% Sincerity

  
By David Roche
Perigee, 2008

David Roche's book takes the reader on a journey of his life experiences, with stories and anecdotes that range from spiritual to raucous.  David has a craniofacial condition, venous malformation.  Available at bookstores and at Amazon.com.  

 

 



Did You Know?

Cranial Nerve 5

Motor and sensory nerve-Trigeminal Nerve-Carries sensory information from most of the head, neck, sinuses, and face. Also carries sensory information for ear and tympanic membrane. Provides motor supply to the muscles of masticulation (chewing), and to some of the muscles on the floor of the mouth. Also provides motor supply to tensor tympani (small muscle in the middle ear which tenses to protect the eardrum).

Did You Know?

Cranial Nerve 1

Sensory nerve- Olfactory Nerve -controls sense of smell


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