Moebius Syndrome Foundation Administration

Booklets

Moebius Syndrome: 2 In a Series

The 18 page booklet on Moebius Syndrome was published by AboutFace and the Cleft Palate Foundation. For a copy, request the Informational Packet on the contact us page, or contact the Cleft Palate Foundation at www.cleftline.org or 919 933-9044.

 

AboutFace Resource for New Parents - 'Facing It Together:  A New Resource Guide for Parents'

Facing It Together: A New Resource Guide for Parents Raising a Baby with a Facial Difference is offered by AboutFace International, Inc. in Canada.  The program consists of a workbook and a DVD.  It addresses the challenges facing parents and is designed to help parents manage social and emotional situations they will face during the first few years of raising a baby with a facial difference.  A preview of the workbook and the DVD are on AboutFace's web site, www.aboutface.ca.  Check their web site for additional information or to order the workbook and DVD.  The cost is $15 for the workbook and DVD, plus shipping ($4 within Canada; $8 in U.S.; $16 international).   AboutFaceInternational can also be contacted at 416 597-2229 ext. 21.

 

 

A Guide to Understanding Moebius Syndrome

This booklet is offered by the Childrens Craniofacial Association in Dallas, Texas.   It can be downloaded from their web site www.ccakids.org or requested by contacting them at 800 535-3643 or 214 570-9099, or by email at contactCCA@ccakids.com.