Moebius Syndrome Foundation Administration

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Moebius Syndrome Awareness Day

Moebius Syndrome Awareness Day Activities


Moebius Syndrome Awareness Day 2014:

 

Moebius Syndrome Awareness Day is an event which is celebrated globally each year on January 24th- the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.

The aim of Moebius Syndrome Awareness Day is to raise awareness about this rare condition and to educate others about it. Each year participants are encouraged to wear purple and raise awareness through various means and channels.

For more information on Moebius Syndrome and Moebius Syndrome Awareness Day please visit www.moebiussyndrome.com and www.manyfacesofmoebiussyndrome.com


 


OSU Moebius Awareness Project

 

How do you express yourself? There are so many unique ways to express your true self to others, and individuals with Moebius Syndrome find ways beyond the face to do so. Research in OSU's Disability and Social Interaction Lab shows that education about Moebius syndrome and other types of facial paralysis creates more positive impressions.

Help us raise awareness: take a photo of yourself with a sign answering the question, "how you express yourself?" Use our template, or write your own. Post it on the Moebius Syndrome Foundation Facebook page. Challenge two of your friends to do the same by tagging them. Read more about OSU's awareness project: http://liberalarts.oregonstate.edu/sps/dsil/moebius-syndrome-awareness-project



Social Media and MSAD
by Kevin & Sarah Lockwood

USING #HASHTAGS
The official hashtag for Moebius Syndrome Awareness Day is #MoebiusAwareness. Other useful hashtags are #moebiussyndrome, #craniofacial and #raredisease. You can now use hashtags on Facebook, Twitter and Instagram. Hashtags are also a great way to to see what other people are doing for Moebius Syndrome Awareness Day!


T-Shirts

Moebius Syndrome Awareness Day Shirts are available at www.freshprintz.com/moebius

 


"I'm Smiling on the Inside!" & "Look Beyond Face Value - Moebius Syndrome Awareness Day" Stickers

 

The Moebius Syndrome Foundation is providing a label template for labels to wear for Moebius Syndrome Awareness Day on January 24th. You can download the document and print the labels on a color printer. The labels contain the Moebius Syndrome Foundation logo with the words "I'm Smiling on the Inside" in purple. Use labels that are Avery 5163 compatible. Labels can be purchased at office supply stores or on the Internet. You can do an Internet search to locate good prices for labels that are 2" x 4," 10 to a page.

Download "I'm smiling on the inside!" stickers here.

Download "Look beyond face value - Moebius Syndrome Awareness Day" stickers here. 

You can also wear the labels / badges on Rare Disease Day on February 28th.




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