Moebius Syndrome Foundation Administration


11th Moebius Syndrome Conference

Where: Bethesda, Maryland
When: 18-Jul-14 01:00 PM until 20-Jul-14 01:00 PM

11th Moebius Syndrome Conference



July 18 - 20, 2014

Bethesda North Marriott Hotel & Conference Center

5701 Marinelli Rd 

North Bethesda, Maryland 20852

Plan to attend the 11th Moebius Syndrome Conference, July 18-20, 2014 just outside of DC in North Bethesda, Maryland. 

 Read the conference brochure and register for the conference by mail

 Go to the conference website and register for the conference online

2014 Conference Sponsorship & Donation Opportunities

Please consider supporting the 2014 Moebius Syndrome Conference with a sponsorship or donation. Please consider fundraising on behalf of the Moebius Syndrome Foundation.

Your generous contribution will help with the cost of the conference or the conference scholarship fund. The Moebius Syndrome Foundation is a 501 c (3) charitable organization, and your sponsorship will be tax-deductible to the fullest extent of the law. EIN is 13-3753992.

Please read or download the attached Sponsorship/Donation form and Letter. You can use this sample letter or write your own.

The Registration costs for the 2014 Moebius Syndrome Conference will be:

Early Registration (February 2014 through June 18, 2014):

Adult $220

Teen (13-17) $170

Child (4-12) $100

Standard (June 19, 2014 through July 12, 2014):

Adult $245

Teen (13-17) $190

Child (4-12) $110

Onsite (at Conference July 18 - 20, 2014):

Adult $260

Teen (13-17) $205

Child (4-12) $120


There is no registration charge for children under 4, or who are tube-fed.


Conference Scholarships

A limited number of scholarships for first time attendees with financial need (either an adult with Moebius syndrome or a parent of a child with Moebius syndrome) will be offered in the amount of $500. It will cover registration for one adult ($220) plus $280, to be used towards the registration fee(s) of other family members and/or travel expenses. (Scholarships will be awarded in the order received, so it is very important to submit your registration as soon as it opens in February 2014.)

Special hotel rate is $109 + plus tax per night, about $123 total. To make hotel reservations at the conference rate, go to the special link for the Moebius Syndrome Conference: or call the hotel at 1-800-228-9290 or 1-301-822-9200.

Consultations and research opportunities

There will be opportunities for adults and children with Moebius syndrome, and their families, to participate in evaluations (consults) or research studies. Most will take place during the conference, and are limited in number. The appointments are made as registration is received, so it is important to register early. Go to the Conference Website ( or check the Conference Brochure (to be mailed shortly) for more information. 

Child Care Child care will be available for children ages 6 months to 12 years who are registered for the conference. The professional child care will be provided by Kiddie Corp Inc.

There are two steps to sign children up for child care: