Moebius Syndrome Foundation Administration

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Samyra

Samyra

My name is Samyra and I have Moebius syndrome.  I am five years old and am in kindergarten.  I love taking pictures, love to sing and dance and draw.  I am a very happy little girl.  It has taken much love, patience, and devotion from my parents for me to get where I am today.  I have been going to school since I was ten months old.  Thanks to all my teachers and parents I am able to talk, eat, drink, walk and play.

Submitted:  November 2007 

 



Events

11th Moebius Syndrome Conference
11th Moebius Syndrome Conference

Mark Your Calendars Now! Plan to attend the 11th Moebius Syndrome Conference, Friday through Sunday, July 18-20, 2014 in Bethesda, Maryland, just outside of Washington, DC. The 2014 conference will take place at the Bethesda North Marriott Hotel & Conference Center

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