Hi – My name is Madison. I was born on June 6, 1999, with Moebius Syndrome. I was also born with bi-lateral clubfeet and I’ve had 2 surgeries to correct them. I had Nissen fundiplication and g-tube surgery when I was 3 months old and had the g-tube removed at 3 years.
I’ve had a couple dental procedures, which I really didn’t like. I have some hearing loss, but I only like to wear my hearing aides at school.
I live in Castle Rock, Colorado with my Mom, Dad, my sister Aidyn, my new baby brother Shawn and our dog Abbie. I am 7 years old and am in the 2nd grade. I love to swim, dance, sing, read, run, ride my bike, ride horses and just be a crazy kid. I take piano lessons and enjoy playing in recitals. I won 1st place at the science fair for my project on crystals, I was even interviewed on the local news channel.
I’ve been going to the conferences since I was one and the July 2008 conference in San Francisco was my 4th conference.