Moebius Syndrome Foundation Administration

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"See and hear about the shared experiences of children and adults with Moebius Syndrome"
 

The Foundation Mission

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.


Highlights

What is Moebius Syndrome?
What is Moebius Syndrome?

Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.

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9th Moebius Syndrome Conference
9th Moebius Syndrome Conference

The 9th Moebius Syndrome Conference was held in Broomfield, Colorado July 30 - August 1, 2010. We welcomed 402 people at the conference, over 100 attending for the first time. Attendees came from 36 states and 7 other countries.

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Sale Items Benefiting Moebius Research
Sale Items Benefiting Moebius Research

Moebius Syndrome Awareness Teddy Bears and Wristbands will be available at the Conference! Pendants and watches with the Moebius Syndrome Foundation logo are also available, with proceeds benefiting Moebius syndrome research, awareness and conferences.

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Events

10th Moebius Syndrome Conference
10th Moebius Syndrome Conference

Plan now to attend the 10th Moebius Syndrome Conference, Friday, July 13, 2012 - Sunday, July 15, 2012.

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