The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.
There is a web site that can be used when searching the Internet that will donate to the Moebius Syndrome Foundation each time it is used.
NORD is the official US Sponsor of Rare Disease Day on Feb. 28, 2010. Its purpose is to raise awareness of the challenges related to having a rare disease, the need for more research, and the fact that rare diseases are an important public health issue.
The 9th Moebius Syndrome Conference will be held Friday July 30 through Sunday August 1, 2010 in Broomfield, Colorado. The conference will be held at the Omni Interlocken Resort, just outside Denver. Conference brochures will be mailed to everyone on the Moebius Syndrome Foundation mailing list in the US and Canada, and will be available for downloading from this web site, in spring 2010.
