The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.
New Moebius Syndrome T-shirts and Teddy Bears (with the logo “I’m smiling on the inside”), Wristbands and Necklaces (oval and heart) are for sale. T-shirts now come in several colors in infant, children, and adult sizes. All sales proceeds help fund Moebius syndrome research and conferences.
The 10th Moebius Syndrome Conference was held Friday, July 13, 2012 - Sunday, July 15, 2012 in Philadelphia, Pennsylvania. 425 people - 114 with Moebius - from 10 countries attended, making it the largest Conference ever. Over 100 people attended for the first time.
Mark Your Calendars Now! Plan to attend the 11th Moebius Syndrome Conference, Friday through Sunday, July 18-20, 2014 in Bethesda, Maryland, just outside of Washington, DC. The 2014 conference will take place at the Bethesda North Marriott Hotel & Conference Center
