The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.
The 8th International Moebius Syndrome Foundation Conference will be held Friday July 11 – Sunday July 13, 2008 in Parsippany, New Jersey at the Sheraton Parsippany Hotel. Check out the Conference Brochure.
Winners of 2007 Nobel Prize in Medicine Already Impacting our Understanding of the Origins and Development of Moebius Syndrome, a Rare Neurological Disorder. Read the Press Release from the Moebius Syndrome Foundation
On April 23 & 24, 2007 the Moebius Syndrome Foundation hosted the first Moebius Syndrome Scientific Conference which brought together 32 researchers and physicians from 9 countries. The conference was funded by a grant from four institutes of the NIH, the Friends of NIDCR, and the Moebius Syndrome Foundation. For two days the attendees presented their work on the genetics and treatment of the various aspects of Moebius Syndrome, followed by discussions and agreement to work together to unravel the mystery of the cause(s) of Moebius Syndrome.
