The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.
A recent New York Times article featured Kathleen Bogart and her research on Moebius syndrome. The article, by writer Benedict Carey, appeared in the April 5, 2010 edition of the New York Times.
The 9th Moebius Syndrome Conference was held in Broomfield, Colorado July 30 - August 1, 2010. We welcomed 402 people at the conference, over 100 attending for the first time. Attendees came from 36 states and 7 other countries.
The 10th Moebius Syndrome Conference will be held July 13 - 14 - 15, 2012 at the Sheraton City Center in Philadelphia, Pennsylvania. Check back for more details in the coming months.
