The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.
The Moebius Syndrome Foundation is now on Facebook and Twitter! The Facebook group (Moebius Syndrome Foundation) has updated information on the 2010 Conference, a place for people to post their stories or questions, and a discussion forum. The Twitter feed (@MoebiusSyndrome) has disability and Moebius syndrome-related links and information.
A recent New York Times article featured Kathleen Bogart and her research on Moebius syndrome. The article, by writer Benedict Carey, appeared in the April 5, 2010 edition of the New York Times.
The 9th Moebius Syndrome Conference will take place Friday July 30 through Sunday August 1, 2010 in Broomfield, Colorado. The conference will be held at the Omni Interlocken Resort, just outside Denver. A tentative agenda is available now.
